Welcome to the website for the Children with Diabetes UK Advocacy Group.
We have a large online community of Facebook Groups and a Yahoo email and support group. Having a child diagnosed with Type 1 Diabetes can be a frightening experience. Join our group on Facebook which will put you in touch with other families who are raising children with diabetes. It is open to UK parents and carers who would like to discuss all of the personal and scientific aspects of this condition and how it affects their family’s lives. We aim to support families with newly diagnosed children or any families who wish to discuss raising a child with diabetes.
For those not on facebook we have a Yahoo group which can be used like a mailing list:
Who are we?
The Children with Diabetes UK (CWD UK) online groups and the Children with Diabetes UK Advocacy Group are patient-led support groups for families of children with diabetes living in the UK. It is run by families of children with diabetes. The UK mailing list was founded in 2002 and the UK CWD Advocacy Group was formed in 2006. For over 13 years the mailing list service was provided and supported by Children with Diabetes which operates as an Ohio-based. not-for-profit corporation, but as technology changed we are now based on Facebook and have a Yahoo Group in place of the original mailing list.
What do we do?
The groups are open to parents/carers who wants to discuss all of the personal and scientific aspects of diabetes in children and how it affects their family’s lives. We aim to support families with newly diagnosed children or any families who wish to discuss raising a child with diabetes. Our objectives are to increase knowledge and awareness about diabetes and its treatment in children and young people. We share experiences of living with diabetes. We support families who are having problems achieving good control, we increase awareness about new treatments and insulin pump therapy, we support families who are experiencing difficulties in getting support for their children while they are at school or in hospitals. We feel strongly that schools should be given the necessary help and guidance to provide excellent support for children at school. We advocate working in partnership with schools/school personnel with the help of other Patient Groups such as Diabetes UK, INPUT, iPAG, and Juvenile Diabetes Research Foundation to help schools and hospitals to help our children.
All families in England and Wales should join their local Network Group to make their voice heard – More information and all Groups are listed Here
Friends for Life
We have many friends around the world as CWD originally hosted our mailing lists when we started. CWD recently launched a new UK charity which will run and host their original Friends For Life Conference in the UK. The first one takes place this year in Old Windsor from 27-29th October. It is almost sold out!
If you would be interested in attending as a family, young adult, parent, grandparent or friend and would like to know more, please check it out here and it will take you to their Programme. If you click on all the tabs at the bottom of the page it will take you through the pages from Introduction, to meeting our Faculty, our Youth Programme and Childcare staff, other staff members, to finding the link to the conference and finally our schedules for the weekend. It promises to be a wonderful weekend of meeting old and making new Friends For Life and seeing our T1 D children and their siblings having a wonderful time. If you would like more information, please do not hesitate to contact Gwen Sutherland, at firstname.lastname@example.org
Gwen and her team look forward to meeting lots of new families this year!