Filmed especially for CWDUK Phillip Schofield talks Type 1 and what it is like to be a son and a brother to someone with Type 1 Diabetes.
This video was produced for Art Antiques London Party in the Park 2012. JDRF was the sole charity beneficiary of the event on 12 June. For more information about JDRF, the type 1 diabetes charity please visit www.jdrf.org.uk.
Based on the poem ‘A Mother’s Anthem’ by Linda Kaniasty, this film was made by Suscito Films for Children with Diabetes UK to raise awareness as part of Diabetes Awareness Week 2012.
This short film is dedicated to all the Mothers and Fathers who don’t sleep at night, to all the children who live with this condition so bravely and to all the families that this condition touches.
Hope is in a cure.
One of the greatest challenges that parents of children with diabetes face is caring for their children when they have a stomach illness. When kids have a stomach flu and aren’t able to keep food down, blood sugars can drop quickly. With blood sugars dropping and kids unable to eat, parents often resort to a trip to the emergency room for an IV of glucose or a large dose of glucagon. A new study offers an easier alternative.
A team from the Texas Children’s Hospital Diabetes Care Center came up with a novel idea: use very small doses of glucagon, injected subcutaneously using a regular insulin syringe, instead of the usual large dose of glucagon given IM as a way of staving off hypoglycemia in kids with a stomach illness (gastroenteritis) or who were not cooperating and needed food. Whereas a typical glucagon injection delivers 500 to 1,000 µg, the Texas Children’s team suggested the following dosing schedule:
- 20 µg for kids ages 2 or under, and
- 10 µg per year of age for kids from 2 to 15 (20 µg at age 2, 30 µg at age 3, etc.)
- 150 µg for kids 15 or older
Parents were instructed to dilute the glucagon as instructed in the glucagon emergency kit, but then to use a standard U-100 insulin syringe (30, 50, or 100 units) to draw up the glucagon. Each “unit” on the U-100 insulin syringe corresponds to 10 µg of glucagon. Thus kids two or under received two “units” of glucagon, while a 10-year-old would receive 10 “units,” based on the dosing schedule above. Parents monitored blood glucose every 30 minutes. If the child hadn’t improved in 30 minutes, the dose was doubled and given again.
The results were excellent. Given in the doses outlined, blood sugars rose an average of 3.33-5.00 mmol/l (60-90 mg/dl) within 30 minutes and lasted for about an hour. Also, in the doses given as described, the glucagon did not cause an increase in nausea as is typical with large dose glucagon, and none of the kids vomited from the glucagon.
The team stressed that their approach is suitable for relative hypoglycemia in the face of stomach illness or lack of cooperation in eating, not unconsciousness due to severe hypoglycemia.
For further information
Excellent new site to compare and rate your diabetes clinic or find a clinic that supports insulin pumps or CGMS.
Created by patients for patients
John Davis, 72, of Lymington, has been awarded an MBE after heading a support group for patients with diabetes.
Mr Davis founded INPUT, which is campaigning for more diabetics to be prescribed insulin pump therapy.
INPUT estimates that only three per cent of the 300,000 people with Type 1 diabetes in the UK have pumps.
John Davis, who has used one of the devices since 1997, has recently retired from the group, having seen it grow over the past 13 years.
John Davis was first diagnosed with diabetes in 1987 following severe pancreatitis. A pump user himself since 1997, he founded INPUT in 1998.
INPUT serves as a centre for information on insulin pump therapy and an advocacy group for consistent funding for insulin pump therapy across the UK.
NHS Primary Care Trusts must comply with NICE Technology Appraisals, but inadequate governmental supervision of their implementation and little support from the Department of Health to establish best practices have made the NICE guidance on insulin pump therapy very difficult to enforce. INPUT works with Diabetes UK, JDRF, the Department of Health, members of all UK Parliaments, the diabetes care industry, consultant diabetologists, diabetes specialist nurses, general practitioners, to bring about full adoption of the NICE guidance on insulin pump therapy. In 2006 John was winner of the Diabetes UK “HG Wells Award”.
The Faces that Live with Juvenile Diabetes calendar 2012 – a beautiful showcase of just some of the brave, happy and smiley children that live with Type1 diabetes , every day, forever ; no break , no holidays. Hope is in a cure – all proceeds to JDRF
The calendar is now in it’s third year and is bigger and better than ever, with many more families involved. It has been organised by Jo Dury, Helen Campling and Steve Newton, all members of the UK Children with Diabetes (CWD) group and all have children with Type 1 diabetes.
It is retailing for just £6.95 with ALL proceeds being donating to JDRF (Juvenile Diabetes Research Foundation). It makes the ideal christmas present for family and friends, helping to raise the profile of type 1 diabetes by showcasing the beautiful “faces” of our type 1 children and raising money into research as well
John started INPUT in 1998, and it has grown hugely. Having reached the age of 72, John feels he has taken INPUT as far as he can, and that it needs fresh ideas and fresh minds to develop further.
John looks forward to pursuing other interests including serving as Special Advisor to JDRF on CGM, and being a granddad.
Exciting developments in insulin delivery and greater use of CGM are bringing more opportunities for INPUT to make the case for diabetes management technology.
With the Advisory Group now in place, INPUT is in a strong position to build on John’s achievements and expand our activities.
How to Order
If you haven’t got yourselves organised for 2011 just yet then please buy this calendar. It showcases all the gorgeous children who live with Type 1 Diabetes and all proceeds go to JDRF. At only £6.75 each, it is a bargain!
To order please email firstname.lastname@example.org with your name, address (including postcode) or contact us for further information.